Moving account of mother’s journey through parenting a child diagnosed with Treacher Collins Syndrome

 

Why left the room did my doctor? She thought to herself, “Why aren’t these other people leaving my room?”. Eleanor Bahneman

Throughout her eight weeks in the neonatal intensive care unit (NICU), Bella was subjected to a battery of tests and examinations.

Eliza and her family were inundated with a deluge of information and emotions every single day. Within the first week of her hospitalization,

Bella received the diagnosis of Treacher Collins Syndrome, a disorder that impacts the maturation of the face bones and results in microtia, deafness, a receding jaw, a narrow airway, and a rigid cleft palate.

 

When physicians discover why a baby who was born smiling broadly becomes mute, shocking parents.

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