Jordan said that he discovered he is “a carrier of a genetic mutation which means [he] too will live with FTD” when his mother died when he was just 23.
“I’ll experience symptoms in my forties and start to lose my life by the time I’m 45,” Jordan asserts. “As you can imagine, that’s an incredible tough burden to carry and it’s the main reason.
Why at 29 years of age, I’ve decided to quit my job, get out the rat race and try and change the world of dementia.” Since receiving his diagnosis in 2018, Jordan has been attempting.
To ‘find a solution for all varieties of dementia’ and transform the negative into’something really good’ by taking part in ‘running challenges,’ starting with a marathon.
But after finishing his first challenge, he learned that his brother would likewise “die of FTD” in his 40s and that he had been “diagnosed with the same gene mutation.”
The infant ‘was a carrier of the genetic mutation’ as well, Jordan continues, so he and his wife decided to terminate their pregnancy.
