Sweet Ellie, so many people adored you. “Her story will never stop,” a third person said. She has served as a global inspiration and a major contributor to EB awareness-raising.
Nothing will ever be made easy by words. Rest in the knowledge that we all adored her.
When Elliana was only two weeks old, she was diagnosed with junctional epidermolysis bullosa (JEB), a severe form of a rare skin disorder that causes great fragility.
“Blisters may appear in response to minor injury, even from heat rubbing or scratching,” the Mayo Clinic states. In more severe situations, blisters may also develop inside, such as in the stomach or mouth.
